Patient Resources for Patients By Patients: Our Patient Advisory Council Members in action
This year, the ESRD Network Coordinating Center (NCC) has been working with patients from all 18 Networks to develop resources to assist patients with four different small groups, called affinity groups, focused on specific areas of dialysis and transplant care. These included affinity groups on Bloodstream Infection; Home Dialysis, Transplant, a Patient Selected Topic: Grief and Loss.
The ESRD NCC recently released several new resources to address each of the topics. You may recognize the Health Status Release Form (previously developed with Network 12 Patient Representatives) the group made some improvements and suggestions for use. We are grateful to the Patient Advisory Council representatives (Chris Eichmeier, Mark Johnson, Avery Wills, Dan Westcott and Yvonne Steele) that have shared their time and talents on behalf of Network 12.
Visit https://www.esrdncc.org/npfe-lan to review and download the resources for your facility and patients.